Going Down...Which is all Good

All of the levels that should be going down are going down and all those that should stay the same are!

At Assumption, for the next month, we are having a celebrate Worcester art exhibit. This is one of the amazing paintings that was painted by an artist known only as R. Duffy. The exhibit really makes Worcester look beautiful in living technicolor.

I did not get into Boston today. I had to work days and then wait for the guy to come to clean the spot the new chair came with. The window they give you...between 3-5? They made it by the skin of their teeth! The good news is the stain is out!

Brendan, Kerry and the kids went to visit today. I know Dad and Mom must have been very excited to see them. We haven't seen them in a week because they were on vacation. They did stop by our house on the way home so I got to see them for a second and discuss fudge making plans with Lilly for her birthday. ( SHE LOVES CHOCOLATE! ) She's a kid after my own heart :)

Dad was suppose to have a port put in today...guess what...he didn't! Are you surprised? I said to him why don't you just plan on them never doing any procedure the day or time they are going to do it. It will be much easier to plan around. That way if they do offer to do the procedure the day they scheduled it will be a totally unexpected pleasant surprise.

The good news is all of Dad's levels are dropping and in a good way. His kidney function numbers are improving no matter how slow they are still improving. His WBC Count is at 11 so we are almost exactly in normal range 6-10. Much better than the 20 of last week!

I am hoping they will send Dad home this weekend but I don't want to hold my breath. A lot of things have to fall into place for that to happen. He has to come off of the Heparin and go back on Coumadin. When his level reaches where they want it he can go home. That could take two days or it could take four days. Tomorrow doesn't really count because he has to be off of everything to be able to have the port procedure done.  After that he can start the switching. They are suppose to have an infectious disease appointment Wednesday. This was made for him the week he came in thinking he would have been home by now. Because it is in another section of the hospital ( an actual different building ) unless they come to his room they will have to cancel the appt. I don't know why they can't send the doctor to Dad. It's not like he is going anywhere fast. I wish he could just go outside for a while even and enjoy the fresh air and sunshine.  When he gets home we will just have to put him in a screen tent to protect him from "skeeters" and he can have all the fresh air he wants. 

It's 11 days until Lilly's 4th Birthday. Let's hope he will be home to help celebrate. It's hard to believe it's been 4 years since not only Lilly was born but that Dad has been on the transplant list. Lilly was only 4 months old when he was listed and our journey in Boston began. 

Mom and Dad saw an old friend last week. Carol Flavel who was the VAD nurse co-ordinator. Basically she was the brains of Dad's care until the LVAD surgery. She saw Dad all the way through to the surgery...and then she retired! She has been traveling all over the world! She was at the hospital visiting a few friends and she saw Dad's name on the list so she came up to say hi. I wish I were there to see her too. She was so knowledgeable and so friendly but she knew how to get things done and get them done right and fast! We miss her!!!

The blog continues to receive almost 200 hits daily which is still amazing to me.  It's very hard to call 200 people but very easy for 200 people to log onto the blog to get daily updates and for that I am happy. We are so blessed with family and friends and I know everyone has been there right along with us on this journey. 

Thanks again for all that you do. You have been and continue to be our strength.

Until Tomorrow,

Laurie