The List

The List...It's Starting To Become a Game :(

Last week, Dad got the news that he was off the list again because his levels indicated that he was too dry. Needless to say he was not very happy nor were the rest of us. I am beginning to think they put you through this stress to see how you can handle rough situations and then that decides if you get a heart or not! This list is proving to run the lives of those who are on and off it. 

Dad had an appointment today at Brigham and Women's. Auntie Janet drove Mom and Dad in and his appointment went well. His levels are all back to where they should be and they are waiting for the final word from the renal team to see if he can be moved back onto the list at a 1A status. He is continuing to take the IV antibiotics at home and can administer them himself through the PIC line he has in his arm.

A visiting nurse came and then another one came to finish what the first was unsuccessful at. There really is no part of any of this that could be deemed easy.

Dad lost a friend this week. Jim McNalley the owner of the "Old Timer's" in Clinton where Dad and his band Mulligan Stew played for years every other Sunday night. It was always a good time to go and hear them play. It was most fun when the whole big group of our family would go together. The kids would dance and sing the Unicorn song up in front and everyone would sing along. Jim was a great guy and a wonderful family man. He had the voice of an angel and now he can sing among them. He will surely be missed. One simply cannot think of the Old Timer without thinking about Jim and his sweet voice and kind ways.

This past weekend, I went with my Auntie Peggy to the Cape to help her out with a few things. This photo was taken in front of the Lobster Trap where we ate dinner. If you look in the windshield it looks like I am driving the car :)

We managed to get some things done and had a great weather weekend too. We put up a sun blocking film on one of the windows. The package said easy installation, we figured we would give it a whirl. So we read the directions, used all four of our arms, four of our legs and I balanced my head on the windowsill as well. We could have used at least another octopus with 8 more arms. Maybe then we could deem the product an easy installation product. We did a pretty good job and it makes a huge difference. It says it will save 50% in energy costs. If they do the same math to calculate the energy costs as they do to determine the amount of people it takes to perform an easy installation, I am not holding my breath!

On Saturday night I received a very exciting text message from Tracy. They were heading to the hospital to have little miss Vivian.

She is perfect! She is so very cute and was alert the whole time we were there to visit.

Adele is a very happy big sister. She loves her little sister very much.

Colin kept saying "hi baby, burrito" because she was all wrapped and swaddled like a burrito :)

Adele got to give Vivian "a ride" back to the room from the nursery where she had to go to get her shot. 

Everyone is home now and they are a family of 5 :) I got to go over today for a little bit to welcome Vivian home. She was all tuckered out from her journey and was asleep when I arrived. It's ok I know we will have lots of time to play as the years go on. Before you know it we will be watching her get on the bus to go to Kindergarten!

Thanks to everyone who keeps in touch and offers a helping hand when we need it. You are all truly amazing and we couldn't do any of this without help.  

This weekend we have Lilly's 4th birthday party coming up so I am sure there will be more photos next week :)

Have a great week everyone.

Until Next Tuesday,

Laurie